The last week was really hard. We realized that Abby might have a heart condition. She keeps getting "tinglies all over" and it makes her legs buckle and sometimes it makes her faint.
She had described fainting to us one time but I was upstairs when she was doing dishes downstairs and hadn't been a witness to it. She'd told us about the tingly feeling with buckling legs a few times and we didn't quite know what to do with it. I've seen her face change to a strange and beautiful rosy pink (very distinct), in reaction to which she immediately turns to me and says that she is having the "tingly" feeling. Her ballet teacher had seen her legs buckle one time and it took her a few seconds to get Abby to respond to her. Abby seemed confused but she didn't faint. She is always perfectly normal right after with just splitting headache lingering. The headache however is gone within a few minutes as well.
Driving there was painful. Arriving in the ER was almost surreal. Sitting there, where you know people are who spend their days here. With very sick kids. With real problems. And some less sick but still serious enough to warrant a children's hospital. Why on earth are we here?
We saw a pediatrician the next day and it was concluded that it must be heart-related because of the quick recovery Abby experiences. My family's heart-history didn't help her much either. My dad passed away at 52 with massive heart-attack. So did his sister. But most concerning as far as history goes, is my uncle, who had a pace-maker at a very young age. Having it be heart-related was relieving in a sense because seizures are scarier due to possible brain damage. The symptoms prior to the events suggest a heart condition as well, possibly one where one's heart, normally beating at 75 beats per minute, speeds up to 250 beats per minute. This results in the heart fluttering, rather than pumping blood, leaving the brain without its much needed oxygen and resulting in the experienced fainting. While this condition itself is scary as it is heart-related, it is neither life-threatening nor urgent. However, the fainting is. She could easily fall and hurt herself. Therefore, she cannot swim, ride a bike, be by herself, climb up trees or any other such things. Abby is quite enjoying parts of this doctor's order. I have to go with her to the bathroom and she no longer has to take baths by herself. Other times she resents the orders, such as climbing at the baseball park.
We are worried about her falling and getting hurt. We are worried about the unknown.
It's been a week since she fell. She had one other episode. We had talked about her trying to lay down if she can when the tingling starts so that she won't hurt herself. It worked that time. She went down to the floor and never fainted. If that prevented the fainting, then it indicates her heart. It could also have been just a short episode. It is hard because you don't know when something will happen. There are no triggers such as physical activity. I'm tired, exhausted, weary. Abby is happy. She's blissfully unaware as there are more days without incidents and it puts you in a false sense of peacefulness.
Update: In the last two weeks, she has only had the tingly feeling twice, quite a reduction in appearances. She also seems to be at the end of a big growth spurt. Thankfully she is getting checked out thoroughly. We haven't gotten to the cardiologist yet but everything else looks fabulous (except that she may have scoliosis...easily fixable at this age). Here is hoping....